Lyme Disease Sufferers
Do you feel like something is going disastrously wrong with your body and nobody knows what the hell you are going through? You may be suffering from Lyme disease which is caused by Borrelia Burgdorferi and transmitted by ticks. One tick bite can be the reason of Lyme disease. But you may hardly notice it or even be unaware of tick bite because of its small size.
How long do you think it takes to recognize an new disease like Lyme disease?
It was first medically determined as a Lyme disease by Reverend Dr. John Walker in 1764. It was 1982, when they found the bug itself – Borrelia Burgdorferi. And only then they confirmed, that it comes from the tick saliva.
How did it happen, that the HIV virus 120 nanometers in size was discovered 72 times faster, that the Lyme disease spirochete, which is 12,000 times bigger then the HIV virus – 10 micrometers in size?
So what is common between Lyme disease and Syphilis, except that both of them are cause by snake like bugs?
Do you think, if it is so difficult for scientists to identify Lyme disease, it is easy in the regular doctor’s office? No, if you are not looking for Lyme disease.
If you are bitten by it, you can always get and antiserum and eventually get well. But this is not the case when you deal with Lyme disease. It is poppy seed sized innocent looking tick, that bites you. Often you don’t even know about it – not like snakes! The scary thing is: besides Lyme disease you can get other serious illnesses from it like Babesiosis and Human Granulocytic Anaplasmosis.
How Lyme Disease starts?
Have you ever seen a bull’s eye? That is how Lyme disease starts. First thing you might see what is called and described as a “bull’s eye” lesion: the red ring with dark red sometimes indurated center inside at the tick bite site. Unfortunately it often goes unnoticed.
Soon after initial invasion, Lyme disease starts to spread. It goes into the skin, causing rashes, muscles, tendons, joints, that causes pains. Also it goes into the heart and nervous system including brain.
Is there any remedy for this horrible Lyme disease? With the help of modern western medicine and with all its antibiotics there should be a remedy. And medical researchers came up with antibiotic regimens, that should kill the bug right away. It was the perfect time for them to declare victory. What they did not know was: Lyme disease would arise so many controversies and debates that even politicians would get involved.
If you buy a shirt or pants and you realize that it does not fit what do you do? You get another one or a full refund. Same thing happened with Lyme disease patients. Up to one third of Lyme disease patients were not getting better despite treatment. So they went to their doctors, saying, that additional Lyme disease treatment may be necessary. So medical researches did 4 controlled double blind studies. Two of them showed benefits of long Lyme disease treatment, another two did not. So what did the official medicine do?
October 2007. The most respected US medical journal “New England Journal of Medicine” (NEJM) publishes the review, dedicated to “Chronic Lyme disease”. Conclusion: not scientifically justified, no need for a long Lyme disease antibiotic treatment.
What this means is: they may be testing you for Lyme disease, specific for your region, but you might get it somewhere else, which is different from they are testing for.
But what if your body could not defend itself? Cannot make antibodies to attack the bug? Or you produce too little? Then you get really sick, because you do not have a weapon to protect yourself. And the Lyme tests will be negative, so they cannot even officially diagnose you with Lyme disease. It is called seronegative Lyme disease. That is when you are really in trouble, because you are sick, but you tests are negative or equivocal. It is like being at gunpoint in front of the attacker. I wonder, how George W. Bush – the president of the United States – was treated, when he was diagnosed with what appeared to be Lyme disease in 2006?
Why nobody is so excited about how many days you may be treated for urinary tract infection, but everybody goes crazy about treatment of Lyme disease?
What he did was: he was treating his Lyme disease patients according to what he thought was right for them. He was treating his Lyme disease patients according to International Lyme And Associated Diseases Society (ILADS) recommendations. What the insurance company wanted him to do was to treat Lyme disease patients as per Infections Disease Society of America (IDSA) recommendations.
2006. Connecticut. Attorney General’s office. Mr. Richard Blumenthal is facing reelection in November 2006. He is very well aware of the patient’s rage because of insurances denial to pay for long Lyme disease treatment. He meets with the Lyme disease activists. This is not the first time he meets with them. In 1999 he initiated the hearings about insurance coverage for long term treatment for Lyme disease.
Lyme Disease Treatment
Health Insurance companies denied payments for Lyme disease treatments because Infections Disease Society of America (IDSA) does not recommend prolonged treatment for Lyme disease. Moreover IDSA had bias appointing the chairman, refused to accept the information about chronic Lyme disease, “blocked appointment of scientists and physicians with divergent views on chronic Lyme disease”, etc.
But still live became easier for doctors and patients: in 2009 Connecticut and then Rhode Island passed the laws, protecting doctors from sanctions for long Lyme disease treatment.
What is the reason of such serious disagreement between to groups of Lyme disease experts: IDSA and ILADS?
IDSA has reasonable guide lines, based on the very strict Lyme disease diagnostic criteria. But ILADS makes a very strong point, that Lyme disease cannot be diagnosed by official criteria.
What if there is something else going on? May be it is not only Lyme disease?
It should be the opposite trend, because of awareness about Lyme disease. More people are using repellents, more people are avoiding woods, the government is deploying various measures.
Obviously there are no more ticks. Obviously there are probably less tick bites. The only plausible explanation of this rapid growth of Lyme disease is improving diagnosis. But if the growth is so fast, it means that our ability to diagnose it by lab tests are very poor. This is with all modern technology, Internet and supercomputers? Could there be one thing, that can explain Lyme disease elusive nature?
Biofilms take place in 80% of all Lyme disease. And Lyme disease is one of them. Lyme disease is not measles, not common cold, that is designed to hit fast and to spread to another person. Lyme disease is designed to live long time in the host – ticks, deers and may be humans. That is why it is so elusive. This is because Lyme disease is making biofilm and hiding in it!
Dr. Eva Sapi, a professor of cellular and molecular biology at the University of New Haven, is doing cancer research. But suddenly she starts suffering from brain swelling. Clinically she had Lyme disease but her tests were negative. So she had to start her own research. What she along with Dr. McDonald found was: ticks bear other pathogens like mycoplasma along with Lyme spirochete. And they can be hiding in the Biofilms! I wonder why the revised 2010 year recommendations for Lyme disease management by Infections Disease Society of America (IDSA) do not say a word about such an important discovery. It was their expert’s job to take this into consideration. Or may be they did not wanted to? What was the reason behind this? Looks like the experts of IDSA did not appreciate Dr. Sapi and Dr. McDonald’s work. But the ordinary people did: they gave Oscar nomination for the movie “Under your skin” dedicated to Dr. Sapi and Dr. McDonald’s work. They do deserve to be praised, because the fact, that Lyme disease is hiding in the biofilm can explain the treatment failures. So may be we should break the biofilm before treating Lyme disease?
Bottom line is simple:
1. If you were bitten by a tick and experienced rash – come for evaluation, because the sooner you get Lyme disease treatment – the higher your chances for recovery.
Even if you were not bitten by a tick, but had symptoms, suggestive of Lyme disease like rash, you may benefit from evaluation for Lyme disease anyway, because often tick bites are unrecognized.
Get better with Lyme disease treatment by taking antibiotics that hit the Lyme bugs in their hidden places, where they are hiding!
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